Stronger, by Mandisa; that’s the first song that played on my Songza station as I sat down to write this post. I don’t think it’s a coincidence either. It was God reminding me that with Him I am stronger than Lyme disease and Babesia!
One thing I promised myself when I started this blog is that I would “keep it real”. As much as I’d love to have anyone reading this believe my life is always fun with beekeeping, homesteading, etc., that unfortunately is not reality. A huge part of time and energy is spent trying to get Lyme disease and Babesia into permanent remission.
Getting to remission is easier said than done! The last two months have been some of the most difficult since I began this journey two and a half years ago. It is also why my blog post’s have been intermittent. When I was finally diagnosed, the only things I knew about Lyme disease was it was transmitted by ticks, and I (foolishly) thought antibiotics easily took care of the infection. I honestly had no idea how long it would take to try to rid my body of these infections. After six months of difficult, antibiotic treatments, I’ve barely improved. If you want to read more about what’s been going on during the last six months, click here.
I’ve avoided certain treatments, like IV therapies because they make me nervous. IV therapies seem to suggest “I’m sick” and I don’t like to think of myself that way! They are expensive, and I don’t consider myself a “debilitated” Lyme person. I shared that with my husband and he said this:“So you’re waiting until your debilitated before you try something more drastic?”
I wanted to say “Uh, no that’s not what I’m doing!” but I just sat there in silence, and thought for a minute. I asked him if he was okay with me looking into other treatment options, even if they were more expensive and he replied, “Absolutely.” I pretty much wanted to start crying right then. I cannot for one minute fathom how in the world God blessed me, this completely messed up human, with such an amazing person to spend my life with!
Although I’m not debilitated, the constant up and down during past two and half years on the “Lyme roller coaster” is draining for both of us. I do not want to live like this the rest of my life, and I know he doesn’t want to either!
I asked my doctor about IVIG, hyperbaric oxygen therapy, ozone therapy, UV light therapy, hydrogen peroxide IV’s, Vitamin C IV’s, and stem cell treatment. He’s supportive of me trying and/or all of them. He referred me to a clinic called Infusio. He’s met the founder, and said what they offer seems promising.
I’ve begun researching the therapies I mentioned. They have helped people put their Lyme and co-infections into permanent remission. The difficult part is to find the “thing” that works for your body, and from what I’ve learned so far, it is trial and error just like everything else in the Lyme world.
I’ll be writing about what I learn as I research each one. Once my research is done, I’ll pray A LOT, talk with my husband, and my doctor to decide what’s next. One thing I know for sure, I will get off this roller coaster because I’m not quitting until I’m better!
Tomorrow, I’ll be meeting with Phil, the founder of Infusio to discuss their treatment options. Prayers and good wishes are appreciated as I begin this somewhat overwhelming task!
If you know anyone who’s been treated for Lyme, cancer, or another chronic condition using any of the therapies I mentioned in this post, I would love to hear about their success and/or failure. I appreciate any information!
September 8, 2014 at 5:08 pm
I’ve done several, Phone might be easiest to share.
Margret Maria Cordts http://www.flickr.com/photos/Cordts
September 9, 2014 at 8:00 am
Hi Margret, thanks for your willingness to share. I’ve saved your number but deleted it from the public comment section.I would love to talk about your experience. When is a good time for me to call you? What time zone are you in? Thank you!
September 8, 2014 at 6:05 pm
Jen, I’m so sorry you have to go through this. We will keep the prayers coming! I am very close with a family whose son was treated for Lyme this summer in Germany. Last I heard he was improving. I dont know how similar the treatment protocol is to infuso, maybe the same but they were willing to travel to Germany for a few months out of sheer desperation. I will find out as much as I can for you and pass it on.
September 10, 2014 at 10:23 am
Thank you for the prayers and the info about Germany!
September 9, 2014 at 9:01 pm
Will be praying for you! Imnsho sorry you’re dealing with all of this!
September 10, 2014 at 10:24 am
Thank you Janelle! I’m so ready to finish this chapter of my life and move on!
September 11, 2014 at 10:58 am
Hi Jen, turns out my friends went with Infuso also and have had the best results so far. They believe it was $$ well spent. Hopefully your meeting with the founder offered some encouragement.
September 11, 2014 at 12:45 pm
Wow, Anita! Thanks so much for finding this out for me! Do you think they’d be willing to talk to me about their experience? This is a big decision so I’m trying to get as much feedback as possible 🙂 if they are willing to talk with me, please give them my email and I will communicate with them directly. Thank you again!!
September 13, 2014 at 9:09 pm
Hi Jen, yes I will give the mom your email. I’m sure she’d be happy to talk with you. She’s juggling four kids plus one with Lyme so if she doesn’t respond ASAP that’s why. 🙂
September 13, 2014 at 9:27 pm
Wonderful, thank you so much!
September 24, 2014 at 7:34 pm
Love & prayers to my beautiful daughter! xoxo