Wow, after putting this post together, I realized I should have been answering questions this way for the past 2 1/2 years!
I’ve complied all the questions I’ve received in the past couple months into this one post. I hope sharing the questions and answers here will be more helpful that me replying individually.
I’ll plan on answering questions this way in the future and if I get more questions, I’ll try my best to do a Q&A post monthly.
Question from Judy S. on 4/6/17
“My daughters IV treatments are on hold to treat a C Diff infection. Did you have similar GI issues and if so, did the motility go to normal range after the stem cell infusions?”
Answer: Hello Judy, I never had C Diff, I definitely had gut symbiosis, diagnosed by a Doctor of Chinese Medicine. I also had gut issues most of my life but back then thought having a bowel movement a few times a week was normal! As the Lyme infection progress, it changed to me having more typically IBS symptoms, even though I didn’t realize that is what I was experiencing.
My GI issues have been completed resolved for at least 2 years. Ironically, I had big improvements after my first few rounds of antibiotics. I did have time where I needed to stop the antibiotics to give my gut a break. My LLND also had me take nystatin and high dose probiotics anytime I took antibiotics. By the time I went to Infusio in 2014, I had occasional and mild GI issues.
I believe lowering my inflammation via dietary choices, bone broth, high does probiotic supplementation, a supplement called GI Revive by Designs for Health, and eating fermented foods regularly helped to heal my gut. I also believe the GAPS program is an excellent way to heal the gut.
Question from Lisa A. 4/10/17
“If you use your own cells, aren’t you putting the diseases back into your own body? We are looking into umbilical stem cells that they do in Panama. I was conditionally accepted in Panama based on autoimmune diseases. They don’t advertise Lyme treatment, per se.”
Answer: Hi Lisa, I had a similar concern before going to Infusio. I asked my LLND his opinion as he is familiar with stem cell treatments. He told me that he believed it was very unlikely that the spirochete could be in our stem cells. He said the spirochete needs an access way into the cell. They use trickery to get the key to a door to get into the cell. Stem cells are early in the growth process so it’s much harder to get into the stem cell. This question has also be asked on the Infusio Exchange Facebook group and they said that Lyme doesn’t live in the stem cells.
With regard to umbilical stem cells, from what I read they really do not help Lyme. I also feel the little bit I know about embryonic stem cells, different form umbilical, are concerning because they do not stop multiplying like your own (autologous) stem cells do.
Question from Linnea R. 4/12/17
“Have you noticed trends as to why certain people haven’t improved after Infusio? Or does it seem to be random? Do you think you need to do a certain amount of “killing” the bacteria prior to this treatment to be successful?”
“I read on one site that stem cell therapy could further spread the bacteria, if they’re removing it from your body, then injecting it back into you. Have you heard about this? It seems that you are doing great after receiving treatment.”
“How important do you think nutrition is alongside this program? I’ve cut out refined sugar (which has been difficult) and do not have gluten sensitivity. I try to eat organic, and try to avoid processed foods. Dietary restrictions are one thing I really struggle with because I am already thin and I lose weight very easily, especially when I make dietary changes.”
“I know you had a wonderful experience at Infusio, it sounds like it truly helped you get your life back. I’ve heard other people say this as well, but I’m nervous due to those who don’t get better. Any input you have would be helpful!”
Answer: Hi Linnea, I have not noticed any trends in the people who’ve shared their story via my blog. This may be a question to pose on the Infusio Exchange Facebook Page. I personally don’t think you need to kill a certain amount of the bacteria prior to Infusio. They have plenty of IV options to”kill” bacteria, they used Dioxychlor while I was in Germany. I also believe ozone has a “killing” effect.
I do think nutrition is a very important part for full recovery. I think you can follow a restricted diet and not lose weight. If you can tolerate broth, it is an excellent way to nourish your body. Nourishing Herbal Infusions are also great, you can find more info on those here. I also believe managing your light exposure and reducing non-native EMF exposure is very important, I spoke a bit about this in my most recent update.
With regard to your nervousness about people not getting better, just like any treatment option for Lyme, Infusio works for some and not others. I do believe their success rate is higher than other medical facilities that are treating Lyme.
Question from Philip S. 4/14/17
“I have had chronic Lyme disease for over 10 years and I’m considering a consult with Infusio in Germany. Any way we can talk on the phone briefly about your experience, I won’t take much of your time up. Much appreciated.”
Answer: Hey Philip, I recommend joining the Infusio Exchange, the Stem Cell, and Post Stem Cell groups on Facebook. You will have access to many more people who been treated at Infusio or Medigrun. If you still have more questions or one’s that are unanswered after reaching out in those groups, I am more than happy to chat with you via phone.
Question from Andy S. 4/14/17
Thanks for any additional info you have time to provide!!”
“Would you consider this treatment successful for you? There are so many sites and clinics with stem cell treatments.”
Answer Hi Bruce, Absolutely, it was a success!
With regard to other clinics, I would be sure to ask what type of stem cell treatments they are doing and if they have success treating Lyme. Many stem cell clinics are only addressing joint pain or other pain issues in the body. Also, remember Infusio and Medigrun aren’t just stem cell clinics, they are doing thymus therapy to help remodulate the immune system and many other types of supportive therapies to help the body heal.
Question from Alisa 4/28/17
“I am considering doing Infusio in Germany and wanted to get some feedback from your experience. I was looking for a direct email for you but could not find one. Would you mind emailing me?”
Answer: Hey Alisa, same answer I gave for Tanya, Vanessa, and Brian 🙂 – if the groups aren’t helpful, please feel free to email me at firstname.lastname@example.org.
Question from Jennifer H. 4/29/17
“I wanted to know if you ever ended up going through with the stem cell treatment? If so how has it worked out and if not what were your reasons? Also how long have you had lyme and how have you treated it?”
Answer: Hi Jennifer, yes, I had treatment at Infusio Frankfurt in October 2014 and have been in remission since. I had Lyme since I was an elementary school aged kid and prior to Infusio I worked with a LLND for 2 years. You can read about my treatment protocols with my ND, each day of my treatments at Infusio, and my post treatment updates, all here on my blog.
Question from Lesa M. 4/30/17
Infusio and recovered?”
“I have Lyme and have chosen to get stem cell treatment. I was initially going to go to Infusio as it is the main one and the results seem pretty remarkable. However after doing a lot of research, I noticed, Michael Wittstadt, has now left to set up his own clinic, Medigrun. I have read a lot of positive things about his work at infusio and after speaking to him on the phone, he seems like a really nice person as well as an attentive doctor.”
“I understand you were treated by him at infusio? The dilemma I have now is that Infusio have changed their protocol to include fat stem cells over blood stem cells (which Michael uses) and I think there are a lot of other differences between the two. Therefore I am so confused as what route I should take.”