Honeychick Homestead

Homestead, Health, and Happiness


4 Comments

Pre-Infusio – Brian

Houston Brian 1

Here’s a photo of Brian, he said this about the photo “The picture is from two and a half years ago when I was near my normal of 140 pounds and only had some of the symptoms affecting me.”

Infusio Treatment Dates: April 4 – 14, 2016

Name:  Brian

Age: 26

What have you been diagnosed with?  

 – Lyme Stage 3 by Infusio in California

– SIBO (small intestinal bacteria overgrowth).

When were you diagnosed?

  • Lyme  02/05/16
  • SIBO   12/31/15

How long have you been treating Lyme and/or other infections?

  • SIBO – 14 days Rifaximin  in February 2016
  • Lyme – no treatments except two days of IVs when at Infusio for diagnosis
  • Two years prior to diagnoses:  I’ve been surviving on supplements and diet.  Also had similar problems 7 years ago (2009 – 2011).  Never got a diagnosis although I went to Mayo Clinic and Medical College of GA.  I recovered enough to complete BS in Bio Engineering, Masters in Dietetics, and internship in Dietetics 2014, surviving on various diets and exercise whenever possible.

How were you diagnosed?

  • Lyme –  Global Diagnostices
  • SIBO  – small intestine biopsy at Georgia Regents Hospital (Dr Rao).   (2 SIBO breath tests came back negative)

If you had a Western Blot test, did it show positive for Lyme according to CDC standards?

2011 –  I was tested for Lyme at Mayo Clinic.  I don’t know what test they used.  It came back negative.

Were you misdiagnosed with anything else prior to Lyme diagnosis?

No diagnoses from any Doctor or anyone in last 7 years until recent diagnoses with Lyme and SIBO. So, no.

Do you remember a tick bite and/or bulls eye rash? 

No rash but had about 5 baby ticks when I was around 9 years old while on vacation in Arkansas Ozarks. Parents took me to a doctor to remove them.

How long do you think you’ve been infected?

Not sure.  I’ve had major head and joint aches from about age 12 to 21.   When I was about 21 it got worse for about two years as I lost weight (about 20 pounds from 5’10” and 140lbs to 120lbs) and had no energy, then somehow I became well enough to finish school as I stated earlier.

What treatments have you tried? If possible, please list what medications, herbs, and/or supplements you’ve taken.   

Nothing specific to Lyme

  • Chiropractic, some acupuncture recently, intermittent massages, yoga and meditation, salt spa
  • Diet:     Paleo (and low carb Paleo), Weston A Price,  raw food,  a raw milk diet, SCD  (specific carbohydrate diet), and intermittent fasting.
  • Food and Supplements:
    • Homemade yogurt, raw pastured egg yolks, grass fed liver & organ meats (kidney, heart, and tripe), lots of home made bone broth, home-made fermented veggies and sauerkraut, MCTs (medium chain triglycerides)
    • Digestive enzymes, probiotics, Betain-HCL, L-glutamine, green super foods, vitamin D & cod liver oil, PepZin (zinc and L-Carnosine), mastic gum, bromelain, bitter greens, licorice, nettle marshmallow and other teas, gelatin powder, multivitamins, parasite cleanse, leaky gut protocols, milk thistle, and molybdenum,
    • Essential oils (clove, oregano, cinnamon, etc)
    • Seaweed for iodine, colloidal silver as a natural antibiotic
    • Bovine Colostrum (ThereaPRP) for immune system
    • Probably some others that I can’t remember off top of head.

Do you feel any of your current and/or prior treatments helped?

Intermittent fasting with lots of sun bathing and calories (especially from cheese, egg yolks, and milk and cereals) put some weight back on me and gave me energy for about a year but left me with the head and joint aches. I could basically tell I was just delaying the worsening of my condition.

Please rate your overall well being at this time, using a percentage. For example, 100% would be in perfect health, and symptom free.

50-60%, but hard to really judge because I might say 20-30% if I was forcing myself to eat anywhere near the amount of calories I need (which I’ve done very often over the past 2 years in which I’ve gone from being 140 lbs again down to about 110 lbs now). Key thing I’ve learned is forcing the calories in made things worse symptom-wise and led to being unable to eat due to pain and loss of weight anyways; therefore I try not to force food in me.

Please list your top five to ten symptoms, in order of severity. Give a rating of pain and/or severity, if possible. (1=mild to 10=severe)

1. Nerve Pain – pain level 7-9

Generally after eating or fasting the pain starts.  The pain can start from any of about 9 points out of the following: left temple, back of left head, back of left neck, top of left shoulder blade, under left shoulder blade, two other spots along left spine, under left lower rib of my front side, and outer left hip. But, usually it will start in one of two locations with the main one being under the lower left rib near stomach (around the spleen’s location) and the next major starting point being under the left shoulder blade. Then, the pain will radiate to most of the other spots although it might not hit them all and it might not go in any particular order.

Pain also radiates down left leg and arm if I eat too much or eat non-paleo type foods (grains, legumes, dairy, eggs, nightshades). My arm and leg will often fall asleep/go numb on their own accord at these times and the arm and leg will be in major pain upon regaining feeling (as will the nine spots along my main nerve pain axis).

At times this pain results in a pulsing at the top of my head for about thirty minutes and I end up unable to stay awake.

2. Energy – severity level 7-8

Low Energy- worse if I eat too much although eating less obviously means less calories so even though I feel more energetic on less food I know I can’t overdue it.  Either way I have to sleep about 10-12 hours to keep nerve pain down. I might walk a total of 15 minutes a day. Often I’ll be unable to stay awake if the meal I’ve recently eaten is more than 500 calories or if I’ve eaten more than one meal already in the day.

3. Constipation – severity level 6-7

Usually have a bowel movement every 3 to 5 days even when eating upwards of 2500-3000 calories a day (which I was doing a year or so ago). As you might expect the constipation affected me much more when I was eating more as that meant major bloating and more resulting pain.

4. Brain fog – severity level 5-7

 Yet again, when I was actually eating more calories this might be rated more of a 7-9 as I just can’t handle digestion for some reason.

5. Headaches – pain level 4-5

6. Joint aches – pain level 4-5

7. Depression, irritability, anxiety – severity level 3-4

These could easily be 7-8 if I were eating any grains, dairy, legumes, nightshades, eggs, nuts, or many carbs (basically I have to be low-carb paleo diet these days).

Also have a drop in blood pressure upon standing from a laying down position and feel much worse standing than sitting and sitting than laying down.

Why did you choose to get treatment at Infusio?

I have a friend who has had a near 100% recover from lyme stage 4 there (he was treated just over a year ago and got better within months). He kept pushing me to go to Dr. Battiade even before I had any clue about what Lyme really was. It helped to talk to many of those he knew that got better from lyme at Germany Infusio.  Also, it has helped to talk to some people from your blog as well as others who have spent tons of time and money trying treatments here in America without very satisfactory results.

What is your Infusio treatment goal?

To recover the ability to digest without major pain which will hopefully help with all other symptoms.

Long term goal is to use my dietetics degree and possibly look into functional medicine and help others who are going through similar symptoms/pains to what I and many others have gone through.

Also, I plan on continuing to try protocols and diet afterwards with the hope that they will actually be effective with a healthier immune and digestive system (which the stem cells will hopefully boost).

If you’d like to share anything else, please include it here.

I am curious to know if there are others who have similar nerve pain as I described above.


I’m extremely grateful for the detailed information Brian shared, it amazing to read how much he’s done via his diet to support healing. I can’t wait to hear how he’s doing after treatment at Infusio. Brian is finishing up his treatment in Germany this week, so if you’d like to share encouragement, please do so in the comments. I am sure he’d appreciate it!

 


2 Comments

After Infusio – Robyn’s 100 Day Update

Happy Friday!  I hope everyone had a great week!

I received this update from Robyn in mid-February, sorry for the delay in getting it published!  Besides working on my next therapeutic nutrition assignment since the end of February, I’ve been dealing with internet connectivity issues for the past two weeks, so it put a bit of damper on both homework and blogging! I hope you find this update from Robyn helpful.

Treatment Dates:  September 21 – October 2, 2015

According to Philip and Dr. Sara in Beverly Hills, many of the Global Diagnostic indicators show improvement but my body isn’t quite where we hoped it would be at this point and we are considering additional support for my adrenals and immune system.

This wasn’t a total surprise since I know my body is slow to respond to treatments. I was hoping I would hit the 100 days and things would turn around and I would have better news to share. They explained it could take up to 6 months, so I’m hopeful. Continue reading


Leave a comment

After Infusio – McKenzie’s Two Week Update

Wow, McKenzie’s Mom was super about getting me this update exactly two weeks after she finished treatment, thank you so much! Things have been busy so I’m just getting time to publish it a month later, I hope you find this detailed information helpful!

Treatment dates: January 11 – January 22, 2016

Was the administrative staff in Frankfurt helpful?

Our experience at Infusio was great! All the way around.
Michael (administrative director) & Helena (Wife & Naturheilpraxis) were on vacation. So felt we hit the jackpot, as their replacements were … Dr. Phillip Battiade (founder), Sarah Whitney (naturopathic doctor-Beverly Hills) and Daniel (CEO) ran the office.

Did you feel the doctor and nurses handling your care were competent care providers?

Absolutely, amazing! Nadine (nurse), Sarah, and Phil handled McKenzie’s care. And we honestly couldn’t have been better taken care of.

Was it easy to communicate with everyone at the clinic?

Very easy…everyone spoke great English. And if there were any language barriers at the boarding house Daniel graciously took care of it for us.

Were any questions and/or concerns you had during treatments addressed?

Yes, everyone was always on hand and available.

Did you have any type of bodywork? If so, which type?

McKenzie had reflexology and Slimyonik Lymph treatment or as we called them Cirque Du Soleil pants! Because that’s just what they look like! But they help assist in detoxification. She also had thymus treatment for balancing the bodies immune system. Continue reading


5 Comments

My Late, One Year Update!

Hello there! I am so sorry I’ve been missing in action on my blog for over a month! After returning home from a 30 day cross-country road trip on January 1st, I had a jam-packed January that included:

  • A surprise visit from my best friend from Michigan
  • A visit from my sister and her boyfriend
  • A “family” reunion trip to Oahu, where we met up with friends that live around the U.S. 
  • Celebrating my husbands birthday in Oahu  

I spent the month of February playing catch up on laundry (6 weeks of dirty laundry is no joke!), homework, my first therapeutic nutrition assignment (it was intense and I have five more to complete!), more homework, getting our income taxes done, more homework, getting prepped to list our previous home that we can finally sell, and MORE homework!

I wrote the first draft of this update at the beginning of our road trip in early December. I finally had a moment to review it for grammar and spelling errors. Thank you for your patience and here’s my one year update:

It’s December 2015 and I’ve made it past the one year mark since having treatment at Infusio. I still have ZERO Lyme or co-infection symptoms.

My official “anniversary” date was October 17, 2015. It was quite an uneventful day, I thought about having a party to celebrate but realized that was kind of silly! I’d rather focus on celebrating my wedding anniversary (October 16th) during that time of year 🙂

I’ve been thinking a lot about what to write in this update, especially since I don’t have many health related things to share; so in addition to an update on my health, I’d like to share some encouraging words I received from a friend a couple of months ago.

First, let me start with my overall health. “Stable” is the word that continues to pop into my head. It’s been nice to feel good almost ALL of the time! For years, I’d been used to having random issues flare up almost daily. Not having random things occur is really amazing, it is nice to feel “normal.” It has changed my life for the better! Continue reading


Leave a comment

Pre-Infusio – McKenzie

Infusio Treatment Dates: January 11 – 22, 2016

Name: McKenzie…..Mom – Amanda

Age: 14

What has she been diagnosed with?

Lyme and Babesia

When was she diagnosed?

October 2015

How long has she been treating Lyme and/or other infections?

May 2011

How was she diagnosed?

Bio-resonance Feedback at the Infusio Clinic in Beverly Hills

If she had a Western Blot test, did it show positive for Lyme according to CDC standards?

Yes, we had the Western Blot and it showed positive. We did the test to confirm Infusio’s diagnosis.

Was she misdiagnosed with anything else prior to her Lyme diagnosis?

Yes. Juvenile Arthritis, Fibromyalgia, IBS, and Thyroid issues Continue reading


Leave a comment

After Infusio – Kaylie’s 10 Month Update

Another Infusio update, YAY!  I checked in with Kaylie and her fiancé in September, and again in November, hoping to get a six month update on how she’d been feeling and progressing since treatment.

I was very happy to get this quick update from her fiancé in mid-December. As always, I am so grateful for Kaylie, and her fiancé’s willingness to share her experience!

Infusio Treatment Dates: February 9 – February 20, 2015

We apologize for the delayed response but we wanted to get a couple of Kaylie’s doctors appointments in before we got back to you.

Since the last time we updated, Kaylie’s overall condition has been improving, slower than we would like but, still moving in the right direction.  In our most recent appointment with Infusio (Beverly Hills) Kaylie was scanned specifically for Lyme disease and it came back that her body recognizes it but it is no longer active within her system, which is SUCH a great thing to hear.  The scan also came back that she was clear of Babesia and Bartonella which were co-infections that she was fighting.

Since her treatment in Germany, Kaylie has been following the PK Protocol which was recommended by her Lyme doctor and speaking with the Infusio doctors and we believe that the combination of the stem cell treatment and PK has allowed her to reduce her pain meds and has helped to increase overall energy.

Kaylie feels that she is only about 30% of what she would like to be, but that is better than the 5% she was at this time last year.  It is amazing how much damage this disease has caused over the last ~15 years she has had it and we are in the working phase of getting her body repaired.

We understand that everyone is different and that Lyme will attack people in different ways.  We understand that treatment is the same in that something that works great for one person may not work well for another or visa versa, and by sharing Kaylie’s progress we hope to just let others know our experiences.

As always, thank you so much Jen for getting the word out and helping all those affected by Lyme get information.


Please feel free to share encouragement in the comments! Thanks again Kaylie for sharing, it’s such a blessing!

 

 


Leave a comment

After Infusio – Madison’s 8 Month Update

After emailing Madison a few times in August and September, she texted me in late September asking if we could speak via phone. She wanted to talk before making the decision to share her most recent update. Thankfully, we were able to chat in early October!

During our conversation, Madison shared everything that’s included in this update. She was concerned her update may be disappointing to Infusio, and she didn’t want to shed a negative light on the clinic. She also wanted to confirm I didn’t work for them. I assured her that I am not affiliated with, or employed by Infusio. I also encouraged her to share her experience because I believe all information, positive or negative, is helpful to others.

As my disclaimer says, I am not an employee of Infusio, nor do I receive any compensation from them for maintaining my blog or sharing information. When I started this blog I had never even heard of Infusio! Once I had treatment, I chose to share my story and asked others to share their stories, as a way to provided unbiased information for those considering treatment at Infusio.

I was grateful when I received an email a couple weeks ago with an update on how she’s doing 8 months since treatment. I know many of you have been patiently waiting for her update, and I thank you very much for your patience. I had a mid term due by November 23rd, so I’ve been a bit tied up with school and hosting Thanksgiving. Here’s Madion’s most recent update:

Continue reading